E-ISSN 2277-338X | ISSN 2320-4664
 

Original Research 


Psychological well-being and burden in caregivers of patients with schizophrenia

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot.

Cited by (2)

Abstract
Background: There is a definite paucity of Indian studies looking into the caregiver burden, psychological well-being, and the interface between them.

Objectives: This work aims to study the correlation between these variables.

Materials and Methods: The study sample included 100 patients with a diagnosis of schizophrenia and their caregivers, randomly selected from the patients admitted in the male and female wards of psychiatric center, Jodhpur, as per inclusion and exclusion criteria. Burden Assessment Schedule and Psychological General Well-Being Index were used for the study.

Results: Eighty percent of the caregivers experienced moderate levels of burden. The burden was higher among older (r = 0.334) caregivers and spouse (p < 0.0001). Psychological well-being was low in older caregivers (r = - 0.44) and those with lower educational status, and higher in the siblings (p = 0.002). A strong negative correlation was found between burden and psychological well-being (r = - 0.81).

Conclusion: Quality of care given to the individuals with schizophrenia depends on their primary caregiver. It thus becomes essential to plan interventions that would reduce their burden of care and thus improve their psychological well-being.

Key words: Caregivers, burden, psychological well-being, schizophrenia


 
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REFERENCES
1. Lefley HP. Family burden and family stigma in major mental illness. Am Psychol 1989;44:556-60. [DOI via Crossref]   
2. Van Wijingaarden, Schene AH, Koeter MWJ. Caregiving consequences in the Netherland and other European countries: the development and use of the Involvement Questionnaire. In: Family Interventions in Mental Illness: International Perspectives, Lefley HP, Johnson DL (Eds). Westport, CA: Praeger Publishers; 2002.
3. Lefley HP. Aging parents as caregivers of mentally ill adult children: an emerging social problem. Hosp Commun Psychiatry 1987;38:1063-70. [DOI via Crossref]   
4. Wahl OF, Harman CR. Family views of stigma. Schizophr Bull 1989;15:131-9. [DOI via Crossref]   
5. Schene AH. Objective and subjective dimensions of family burden: towards an integrative framework for research. Soc Psychiatry Psychiatr Epidemiol 1990;25:289-97. [DOI via Crossref]    [Pubmed]   
6. Schene AH, Tessler RC, Gamache GM. Caregiving in severe mental illness: conceptualization and measurement. In: Mental Health Service Evaluation, Knudsen HC, Thornicroft G (Eds). UK: Cambridge University Press, 1996. . pp. 296-316.
7. Schene AH, Van Wijngaarden B, Koeter MWJ. Family caregiving in schizophrenia: domains and distress. Schizophr Bull 1998;24:609-18. [DOI via Crossref]    [Pubmed]   
8. Kuipers E, Paul E, Bebbington PE. Research on burden and coping strategies in families of people with mental disorders: problems and perspectives. In: Families and Mental Disorders: From Burden to Empowerment, Sartorius N, Leff J, Lopez Ibor JJ, Okasha A (Eds). Chichester, UK: John Wiley, 2005. pp. 217-34.
9. Platt S. Measuring the burden of psychiatric illness on the family: an evaluation of some rating scales. Psychol Med 1985;15:383-93. [DOI via Crossref]    [Pubmed]   
10. Thara R, Srinivasan TN. Outcome of marriage in schizophrenia. Soc Psychiatry Psychiatr Epidemiol 1997;32:416-20.
11. Nunley M. The involvement of family in Indian psychiatry. Cult Med Psychiatry 1998;22:317-53. [DOI via Crossref]    [Pubmed]   
12. Shankar R. Family professional collaboration in India. In: Family Intervention in Mental Illness: International Perspectives, Lefley HP, Johnson DL (Eds). Westport, CA: Praeger Publishers, 2002.
13. Cohler BJ, Pickett SA, Cook JA. The psychiatric patient grows older: issues in family care. In: Aging and Caregiving, Liebowitz B, Light E (Eds). New York: Springer, 1991.
14. Hoenig J, Hamilton MW. The schizophrenic patient in the community and his effect in the household. Int J Soc Psychiatry 1966;12:165-76. [DOI via Crossref]    [Pubmed]   
15. Hinrichsen G, Lieberman JA. Family attributions and coping in the prediction of emotional adjustment in family members of patients with schizophrenia. Acta Psychiatr Scand 1999;100: 359-66. [DOI via Crossref]    [Pubmed]   
16. Provencher HL, Fournier JP, Perreault M, Vezina J. The caregiver’s perception of behavioral disturbance in relatives with schizophrenia: a stress coping approach. Commun Ment Health J 2000;36: 293-306. [DOI via Crossref]   
17. Lazarus R, Folkman S. Stress Appraisal and Coping. New York: Springer, 1984. pp. 334-356.
18. Solomon P, Draine J. Subjective burden among family members of mentally ill adults: relation to stress, coping and adaptation. Am J Orthopsychiatry 1996;65:419-27. [DOI via Crossref]   
19. Desai M. Families with problems in India: recommendations for policies, intervention, teaching and research In: Unit for Family Studies (Ed), Research on Families with Problems in India, Vol. 1, Bombay: TISS, 1991.
20. Pai S, Kapur RL. The burden on the family of a psychiatric patient: development of an interview schedule. Br J Psychiatry 1981;138:332-5. [DOI via Crossref]    [Pubmed]   
21. Thara R, Padmavati R, Kumar S, Srinivasan L. Burden Assessment Schedule: instrument to assess burden on caregivers of chronic mentally ill. Indian J Psychiatry 1998;40:21-9.
22. Chakrabarti S, Raj L, Kulhara P, Avasthi A, Verma SK. Comparison of the extent and pattern of family burden in affective disorders and schizophrenia. Indian J Psychiatry 1995;37: 105-12.
23. Roychaudhuri J, Mondal D, Boral A, Bhattacharya A. Family burden among long term psychiatric patients. Indian J Psychiatry 1995;37:81-5.
24. Marimuthu C, Prashanth NR, John JK, Russell P. Mental health of primary caregivers. Indian J Psychiatry 2000;42:46.
25. Oldridge ML, Hughes ICT. Psychological well-being in families with a member suffering from schizophrenia: an investigation into long-standing problems. Br J Psychiatry 1992;161:249-51. [DOI via Crossref]   
26. Stein CH, Wemmerus VA. Searching for normal life: personal accounts of adults with schizophrenia, their parents and well siblings. Am J Commun Psychol 2000;29:725-46.
27. St. Onge M. Lavoie F. The experience of caregiving among mothers of adults suffering from psychotic disorders: factors associated with their psychological distress. Am J Commun Psychol 1997;25:73-94. [DOI via Crossref]   
28. Vaddadi KS, Soosai E, Gilleard CJ, Adlard S. Mental illness, physical abuse and burden of caring relatives. A study of acute psychiatric admission patients. Acta Psychiatr Scand 1997;93:313-17. [DOI via Crossref]   
29. Juvang L, Lambert CE, Lambert VA. Predictors of family caregiver’s burden and quality of life when providing care for a family member with schizophrenia in the People’s Republic of China. Nurs Health Sci 2007;9:192-8. [DOI via Crossref]    [Pubmed]   
30. Rammohan A, Rao K, Subbakrishna DK. Burden and coping in caregivers of persons with schizophrenia. Indian J Psychiatry 2002;44:220-7.
31. Martyns-Yellowe IS. The burden of schizophrenia on the family: a study from Nigeria. Br J Med Psychol 1992;161:779-82. [DOI via Crossref]   
32. Nehra R, Chahrabarti S, Kulhara P, Sharma R. Family burden and its correlates among caregivers of schizophrenia and bipolar affective disorder. J Mental Health Hum Behav 2006;11:78-84.
33. Kumar S, Mohanty S, Kumar A. Perceived burden of care as a function of diagnosis and gender. Indian J Psychiatry 2002;44 (Suppl):54.
34. Ali M, Bhatti RS. Social support system and family burden due to chronic schizophrenia in rural and urban background. Indian J Psychiatry 1988;30:349-53.
35. Ranga Rao NVSS. Comparative Study of Disability and Family Burden in Rural and Urban areas. MD Thesis, Bangalore University, Bangalore, 1988.
36. Jayakumar C, Jagadheesan K, Verma AN. Caregiver’s burden: a comparison between obsessive compulsive disorder and schizophrenia. India J Psychiatry 2002;44:337-42.
37. Vohra AK, Garg S, Gaur DR. A study of burden on families of schizophrenia and depressive disorder. Indian J Psychiatry 2000;42(Supp):33.
38. Magana S, Garcia J, Hernandez M, Cortez R. Psychological distress among Latino family caregivers of adults with schizophrenia: the roles of burden and stigma. Psychiatr Serv 2007; 58:378-84. [DOI via Crossref]    [Pubmed]    [PMC Free Fulltext]   
39. Gopinath PS, Chaturvedi SK. Distressing behaviour of schizophrenics at home. Acta Psychiatr Scand 1992;86:185-8. [DOI via Crossref]   
40. Shankar R, Kamath S, Joseph A. Gender differences in disability: a comparison of married patients with schizophrenia. Schizophr Res 1995;6:17-23. [DOI via Crossref]   
41. McCleery A, Addington J, Addington D. Family assessment in early psychosis. Psychiatry Res 2007;152(2-3):95-102.
42. Martens L, Addington J. The psychological well being of family members of individuals with schizophrenia. Soc Psychiatry Psychiatr Epidemiol 2001;36(3):128-31. [DOI via Crossref]    [Pubmed]   
43. Salleh MR. The burden of care in schizophrenia in Malay families. Acta Psychiatr Scand 1994;89:180-5. [DOI via Crossref]    [Pubmed]   
44. Winefield HR, Harvey EJ. Needs of family caregivers in chronic schizophrenia. Schizophr Bull 1994;20:557-66. [DOI via Crossref]   
45. Madianos M, Economou M, Dafni O, Koukia E, Palli A, Rogakou E. Familial disruption, economic hardship and psychological distress in schizophrenia: can they be measured? Eur Psychiatry 2004; 19:408-14.

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How to Cite this Article
Pubmed Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot. Psychological well-being and burden in caregivers of patients with schizophrenia. Int J Med Sci Public Health. 2015; 4(1): 70-76. doi:10.5455/ijmsph.2015.0817201416


Web Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot. Psychological well-being and burden in caregivers of patients with schizophrenia. http://www.ijmsph.com/?mno=169585 [Access: August 24, 2019]. doi:10.5455/ijmsph.2015.0817201416


AMA (American Medical Association) Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot. Psychological well-being and burden in caregivers of patients with schizophrenia. Int J Med Sci Public Health. 2015; 4(1): 70-76. doi:10.5455/ijmsph.2015.0817201416



Vancouver/ICMJE Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot. Psychological well-being and burden in caregivers of patients with schizophrenia. Int J Med Sci Public Health. (2015), [cited August 24, 2019]; 4(1): 70-76. doi:10.5455/ijmsph.2015.0817201416



Harvard Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot (2015) Psychological well-being and burden in caregivers of patients with schizophrenia. Int J Med Sci Public Health, 4 (1), 70-76. doi:10.5455/ijmsph.2015.0817201416



Turabian Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot. 2015. Psychological well-being and burden in caregivers of patients with schizophrenia. International Journal of Medical Science and Public Health, 4 (1), 70-76. doi:10.5455/ijmsph.2015.0817201416



Chicago Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot. "Psychological well-being and burden in caregivers of patients with schizophrenia." International Journal of Medical Science and Public Health 4 (2015), 70-76. doi:10.5455/ijmsph.2015.0817201416



MLA (The Modern Language Association) Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot. "Psychological well-being and burden in caregivers of patients with schizophrenia." International Journal of Medical Science and Public Health 4.1 (2015), 70-76. Print. doi:10.5455/ijmsph.2015.0817201416



APA (American Psychological Association) Style

Aditya Gupta, R K Solanki, G D Koolwal, Sanjay Gehlot (2015) Psychological well-being and burden in caregivers of patients with schizophrenia. International Journal of Medical Science and Public Health, 4 (1), 70-76. doi:10.5455/ijmsph.2015.0817201416





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